Conflicting views on adherence is likely an issue between parents and adolescents with any type of chronic illness, seeing that even healthy adolescents seem to thrive on views that are contrary to their parents' perspectives. I imagine parents of CF are acutely aware of the tragic outcome for their children. Although the adolescent may perceive it as far off in an unimaginable future, the parents are likely well aware of the shortened lifespan for their child. Poor treatment adherence is associated with lower quality of life, disease progression and an increase in infections that further deteriorate all of the above (Abbott & Gee, 1998). Although there is a paucity of research on the effects of non adherence and life expectancy (Abbott & Gee, 1998), it may not be unreasonable to assume that non-adherence may lead to the earlier demise of the patient. This alone would cause conflict between a knowledgeable parent and a non-adhering adolescent.
I can see
the importance of creating a dynamic in which the adolescent perceives
the parent on their side, rather than as a daunting rule maker. As you
mentioned, improving that relationship can increase treatment adherence.
Thanks for the interesting article.
Abbott, J., & Gee, L.
(1998). Contemporary psychosocial issues in cystic fibrosis: Treatment
adherence and quality of life. Disability And Rehabilitation: An
International, Multidisciplinary Journal, 20(6-7), 262-271.